Showing posts with label Down syndrome. Show all posts
Showing posts with label Down syndrome. Show all posts

Thursday, July 12, 2012

Blog rewind- Field day, an unexpected lesson in happiness

When you are pregnant you lay with your hand on your belly and dream of all of the things you will do with your child.  Their first steps, first words, riding a bike, learning to read, their proms, graduation, college, wedding...you get the idea.  Being a former teacher I could not wait for school activities.  I saw myself volunteering in my children's classrooms and being there to see them on fun days like field day.  When Natalie was born I (hangs head in embarrassed shame) felt like those dreams shattered.  I felt like she wouldn't be able to do them and selfishly that meant I was going to miss out.  Do you see how a new parent still puts their own hopes and wants onto their children?  I wasn't thinking in terms of the experiences being hers to do with and feel however she wanted to.  I wanted to experience it.  Me.

Six years later here I sit.  Mommy to the most amazing three children.  I look at them and all I hope for in their lives is good health and for them to be happy....whatever that may look like to them. 

 Photobucket

 Photobucket
Yes, yes she did painstakingly choose that outfit for field day....down to the flower.  When I told her she needed to have some kind of pants on since it was sports she found pants and put them under her tutu.  Happiness!


 Photobucket
She was too small to jump the hurdles so I told her to just run around them.  :)


 I don't care if they are doctors or hauling garbage.  I only hope that whatever they do it is something that they choose and something that fulfills them and leaves them smiling at the end of the day.  Natalie in particular has taught me that having children has nothing to do with me and everything to do with them.  It doesn't matter if I envisioned volunteering on field day and watching my child be awesome and win.  What matters is that she was there and had a good time.  THIS is the part of me that is changed still changing and evolving the longer I have been a mom.  

Photobucket
Notice all of the other children pulling and fighting to get that rope across the line and win....notice my girl not pulling at all.  Notice her smile, notice their lack there of.  Happy!

Field day.  It was finally here.  The real deal, at the school I used to teach at, surrounded by former colleagues with their students.  I was there as a parent.  I was there to cheer on my daughter no matter how she chose to enjoy HER field day.  I wanted (note, it shouldn't have been about what I wanted at all) to see her fit in.  To mainstream in with all of the kindergarten classes and not stand out.  After six years I want her to be happy first but that damned little voice in the back of my head still insists that fitting in means happiness.  Lesson learned my girl.... lesson learned. 

Photobucket

Photobucket

Joy and being able to find it no matter what is the essence of what happiness is really all about.  I watched my girl get a bit overwhelmed by all of the rules of the games and the amount of people on the field.  I watched her not really comprehend what the heck was going on on what is usually her playground and gymnasium.  I watched that last itty bitty piece of the old me shatter (FINALLY) and what was left behind was the knowledge that it doesn't matter what I feel should make her day fun.  SHE FINDS FUN.  SHE MAKES FUN.  She IS fun. If she doesn't understand what is going on she just does what is fun to her and in the end she had the blast that I wanted her to have to begin with. 

Photobucket

Photobucket

 It was tear jerking and awesome and I went home feeling a bit emotionally raw.  I feel like I walked away from that field that day just a little wiser, a little bit of a better parent and even more in awe of the girl sent here to teach me all of it.  I watched her sister compete with Natalie's class and do everything I used to hope Natalie would do.  I also watched her cheer for her sister and stop to help her succeed.  I watched her get sidetracked into Natalie's world and just have fun.  I watched her naturally be the person I have spent six years morphing into.  I love that.  I love that she just gets "it" and at the end of the day everyone had a blast.  Thank you big girl.  Thank you for teaching us all what happiness really is about and how to just not give a crap what people think.  What would our lives have been without you?  "Perfect"?  Full of blue ribbons and competition to be the best at everything?  No thanks.  I choose belly laughing at my girl having the time of her life running away from the finish line.  I choose a field day all about living in the Id. I choose laid back fun and supportive siblings.  I choose her.  I choose happiness. 

Photobucket 






Friday, July 8, 2011

June, in a nutshell...Part 2: THE BEACH!

YAY for June!!!  June for us means going to the beach with Cliff's family.  We all stay in this huge house right on the beach...as in, I walk 10 steps and I am lounging on the beach like a whale.  WOOT!  

This year was a bit more stress than usual as we began to go gluten free for Natalie...while ON VACATION. (see previous post)  Her bowels weren't quite back to normal yet so that made for a few fun times.  We were stressed about her looking so sickly, and we got there a day late which threw off our vacation chi.  breath  

Photobucket

Once we were there and settled though we kind of fell into a rhythm of island life.  aaaaah deep breath.  We spent WAY more time indoors than we had planned but we still managed to have a great time. Just having Cliff around all day is a vacation in and of itself no matter where we are. It is always so awesome to be able to spend the whole week with his family without the craziness of the holidays.  Just beach time, cousins, aunts, uncles, grandparents, good food, giggles, hugs and fun.  

 Photobucket

Photobucket
It only took 5 years but Natalie finally crawled up into her Uncle Darren's lap for a cuddle.

The beach was an adventure all by itself this year.  I had pictured long days in the sun with lots of swimming and sand castle making.  The reality was that Alyssa was terrified of the crashing waves since she ran out there like a sprung monkey and fell into the waves without her floaties on and FREAKED.  She wouldn't even try until the last day (of course right?)   

We did enjoy some nice walks together and she was happy swimming if I carried her past the crashing part of the wavesShe also had a blast digging deep holes with Ma-maNatalie seemed to enjoy it all but was still really lethargic and due to being SO SKINNY she would get cold really easily but have a tough time warming back up.  We got her out there a few times though to get her beach on.  haha


PhotobucketPhotobucket



Photobucket


Photobucket

Photobucket
Shell hunting anyone?  Why yes, I think I will...


Photobucket

Photobucket
The boys first time at the beach

I love the beach because I LOVE watching all of the cousins together.  Growing up all I had was cousins.  The closest ones, the ones I saw all the time that are closest to my age, are the ones I consider the nearest thing to siblings I have.  Cousins are a big deal in my world.  When Natalie was born my thoughts went to "will her cousins treat her well, will they get her, will they understand how to play with her, will they do all of these things because they are told to or will they REALLY get it?"  I worried about it, I know she will run into people who don't treat her like a person with real thoughts and feelings in the world....but will she fall behind with her cousins and get left out?  I worried, not obsessively but it was always there in my thoughts....waiting for her to get to the age where I would know.  Oh how my niece and nephew have made me smile.  It literally brings me to the brink of tears to see them cuddle with her and make her giggle..on her level.  Sigh of relief...they get it.  They instinctively get that she won't play their games the same way that they do BUT that they can find her way and play and enjoy her just the same.  

I have mentioned before that Allen holds this special little corner of her heart and always has.  There is just something about him that she has always felt drawn to.  She would hug and hug him.  Seriously, my kid....would. not. let. go. haha  

 Photobucket

Sara is younger and took a little longer to understand how to play with her.  This year Allen as usual was the front runner, the one none of us can compete with. (which I LOVE) but Sara was right behind him as a close second.  Lots of cuddles and playing happening this year.  Alyssa on the other hand thinks that Sara hung the moon.  Big girl? Big girl toys? Playing at a big girls speed?  WOOOT!  Where ever Sara was we knew Alyssa would be close behind. 

Photobucket 

Photobucket

Scroll down for the infamous birthday blog post to Alyssa.  I won't go through all of that again but I couldn't leave her party off of this post since she got to celebrate at the beach!  Diva style right?  She picked out her theme this year.  Toy story...are you shocked? hahaha If you know us at all you know that we watch that movie roughly 7 times a week...would be about 3 million but I have to curb it a bit for our sanity. We had cupcakes, presents and FUN!  She is so into birthdays this year that she was beside herself with excitement over being the one the party was for.

Photobucket



Photobucket



Photobucket

Photobucket

She had soooo much fun opening all of her gifts!  She totally cracks me up.  Her new thing is to do "stink eye" on command.  (thank you honey....your boy is in the making...please step away from the girls haha) I will leave you with a good stink eye today.  Have a great weekend!
Photobucket

Monday, January 24, 2011

Full circle...

Sometimes I just sit back and get slapped in the face by how full circle things in my life are.  How many things happen that lead to other things that in the end lead me to places and people that amaze me.  This is how I feel about Ashli and her family and Tiff and her family...and mine.  You saw my post last week about Everlyn and how we were going to visit her.  Well, there is sooo much more to this story.  Grab your coffee and possibly a tissue, we're going to be here a bit.  haha

6 years ago:  I was desperate to be pregnant with my first child and having a heck of time getting there.  I joined an online forum filled with other women in my same predicament.

5 years ago:  PREGNANT!  I proudly moved into the "due in April" board on the site I was on and met a bunch of mommies due when I was.  It was awesome and many, MANY of us still talk today.  One of these women is Ashli.  We talked, kept in touch as our kids grew and shared photos.  She went on to get pregnant with her fourth and was due a month before I had Alyssa.  Bond much? haha  Again, we kept in touch on the site and through Face. book.

3 years ago:  PREGNANT again!  I joined the "due in June" group.  I didn't bond with many women on this board as I was just kind of lurking to refresh my brain on what to expect...blah blah. All of us started having our Junebugs and as I stalked all the newborns in people's signatures one stood out.  One gorgeous little girl with almond shaped eyes.
Photobucket
I immediately contacted her mommy through the site and POOF!  Bff's!  <3  That mommy is Tiff and her mini is Etta.  They live about 4 hours away so we have met a few times in person.  The first time, our Junebugs were only 5 months old.  Awwwwww  Full circle number one = met two awesome mommies on this site through pregnancies and one of them had a little one with DS.

Fast forward to about a year ago.  Ashli emailed me a "secret"...She saw a little girl on Reece's Rainbow and wanted to adopt her.  Miss Everlyn has Down syndrome and was living in a baby home in the Ukraine.  Keep in mind that although Ashli was a mom of 4, none of her children had special needs.  She saw this site because I had posted it on Face.Book about a million times once and she followed the link.  (this is what she tells me anyway haha).  She followed that link, found her girl and despite a million obstacles managed to get to her girl and bring her home.  Full circle two= having Natalie has me obsessively posting about Down syndrome on FB which leads to Ashli following my link and finding this beautiful little girl (with almond shaped eyes).

This is where it gets good.  If you need a bathroom break or a coffee refill I suggest now as a good intermission.  HAHA!

Here is the part that still gives me chills and brings tears to my eyes... I stalk RR like it's my job.  For real, I love their little faces and as much as it breaks my heart to know they are in other countries being treated, lets just say, less than what they deserve. I feel like I owe it to them to at least love them from afar. To get to know their faces and recognize that they are there, that they have at least touched a life in this world even if it is a million miles away.  Well, I went and fell head over heals for two of the minis on there.  Like, I stalked 
and cried
and hoped
and pleaded for the universe to find them families who could take them home as we were not in a position to do so.  One was a little boy (who currently has a mommy and daddy working on bringing him home! YAY!)  and the other....



...the other was Everlyn.
Photobucket

Did you just get chills?  It seriously makes me want to cry to know that she is with someone I know, a family who will love her.  A family filled with children and fun and color and happiness and....life.  Ashli and her husband are amazing and Everlyn already looks like she has lived with them her whole life.  So I told Ashli that someday I was going to make it to St. Louis to visit.   She told me, "Well, you can just wait until we move 4 hours away and come visit."  WHAT!?!?!  4 hours?!  THAT I can do! Could this really be real?  Was I really going to get to meet and hold that little girl I had been gazing at for months?
Photobucket
Photobucket
I think she was just as overjoyed by the awesomeness too don't you think?  hahaha 


Yes, it was real.....and it was amazing.  To see her in person, healthy and loved....well....I just can't explain it.  I wanted to cry and laugh and touch her to make sure she was real.  I wanted to hug Ashli and thank her for saving this little girl.  Ok, I might have just done that but left the words out so I didn't end up sobbing. hahaha  

She selflessly stepped out of her "normal" and into the world of special needs by choice to save her girl.  Are you weeping yet?  SOB!  Let me just remind you that the abortion rate for children with Down syndrome is around 90% in the United States.  Ashli CHOSE what most people fear and in turn throw away.  She fought for her, she spent a lot of time and money for her, she called her her daughter before she met her and CHOSE Down syndrome to be a part of her life.  I love that and part of me likes to think that maybe it was just a teeny bit less scary for her after watching Natalie grow up. 

Ready for the next full circle?  It turns out Ashli and fam were moving to the same state that Tiff lives in!  I was all "OMG!, I can visit them BOTH over the span of a week or so!" WOOTY!   I call Tiff, I call Ashli, I call Tiff again....trying to figure out how far apart they live so I can plan this trip with my girlies.  Then it all clicks as Tiff gets Ashli's address.  "Ummmm, Lori?... Ashli moved into my neighborhood."   CHILLS I TELL YOU!  What are the freaking odds of that?  Out of the entire state, out of all of the people I know around the globe, Ashli moved into Tiff's neighborhood.  I was not only going to get to visit them both but they were going to get to meet and be friends!  Go back, we were ALL on the same site while pregnant, they never met on there.  I met them separately and for two different reasons.  Ashli and I had two pregnancies in common, Tiff and I are bonded by a pregnancy and Down syndrome.  Along comes Everlyn to tie it all together.  I LOVE FULL CIRCLENESS!
Photobucket
Here we are with our "babies" that we were pregnant with together and Everlyn.

Tiff and Etta looking adorable as always <3
 
Photobucket
3 of Ashli's children plus Etta, Alyssa and Natalie.  EEEEK!  The cuteness is blinding!

So I stayed with Tiff since she had extra room.  The girls had a BLAST playing together as we completely took over Tiff's house and ruined Etta's schedule. hahaha
Photobucket
Notice those Junebugs with the same expression and position as they eat their cheez its. haha

Photobucket
Tea time anyone?Photobucket
I can't even take how cute it is that our Junebugs are now old enough to have tea parties.

We played babies
Photobucket

Did each other's makeup
Photobucket

Photobucket

Checked our FB pages...
Photobucket

Rode bikes in the house
Photobucket

Watched movies
Photobucket

...and just hung and had some much needed girl time.
Photobucket

...You know, all the things that make a girly visit complete.  ;)

Photobucket

Photobucket
I couldn't leave out the token "rub a dub dub, three girls in a tub" photos.


I visited Ashli as much as I could.  We were able to be there for her third birthday party which was extra special for two reasons.
1. It was her first birthday with a family.
2. it was her first recognized birthday with accompanying birthday party.

Photobucket



Photobucket 

Photobucket
The gorgeous smash cake that Tiff made for Everlyn.  Say it with me, FULL CIRCLE!

Photobucket

She asked if I would photograph a cake smash session with Everlyn.  I of course said OMG YES!!!  HOW FUN!!!!! "Sure".

Stay tuned for more from our visit and Everlyn's birthday party!  Mean aren't I?  hahaha